Privacy and cookies

Privacy Statement

The Rowling CARE website is owned and maintained by the University of Edinburgh.

This website contains links to unrelated sites. We are not responsible for the content of these sites and this privacy statement does not apply to them.

What personal data do we collect and why?

1) Personal details that you provide by completing a form on this website

The information you provide will be used to add you, or the person you are acting on behalf of, to the Rowling CARE Register. Rowling CARE is a register for people living with neurological conditions in Scotland, and their carers. We use the register to identify and contact people who might be interested in taking part in a research study.

We are using information about you because you have given us your explicit consent to use your data for this purpose, including special category data (health information).

Your personal details will be stored on a password-protected spreadsheet on a secure University of Edinburgh server. We will not share your identifiable data with any third party unless when there is a legal obligation to do so. This means that if we share any data with our research partners, we will remove any personal details first so that you cannot be identified.

We will keep your details for 10 years unless you request to be removed from the register before this.

If you have any questions, would like to be removed from the register, or would like a copy of the information we hold about you, please email, or call 0131 465 9517 during normal office hours.

2) Users’ IP address

Your IP address is automatically logged by our web server. IP addresses are used to observe and analyse users’ interest in this website (number of visits, etc). We collect this information on the basis of our legitimate interests and will only use it to improve our website. We will analyse the information using Google Analytics, but will not share it with any other third parties. We will delete it after five years.

3) Cookies

This site uses cookies – small text files that are placed on your machine to help the site provide a better user experience. In general, cookies are used to retain user preferences, store information for things like shopping baskets, and provide anonymised tracking data to third party applications like Google Analytics. As a rule, cookies will make your browsing experience better. However, you may prefer to disable cookies on this site and on others. The most effective way to do this is to disable cookies in your browser. We suggest consulting the Help section of your browser or the About Cookies website which offers guidance for all modern browsers.


If you have any questions, please email, or call 0131 242 7985 during normal office hours.

Further information

This privacy statement is continued on the University of Edinburgh website at: